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Medical Privacy • Apr 1999 • Patient Privacy

Birth Defects Registries

  • CCHC Testimony on MN Plan to Mandate Genetic Testing of Newborns March 20, 2003
  • CCHC Press Release: Alarmed by Nevada bill to revoke right to private genetic testing/track "defective" kids April 20, 1999
  • The 1998 federal Birth Defects Prevention Act - includes summary and sponsors
  • Nevada Legislature - A.B. 238 - to mandate tracking; forbids right to private genetic testing
  • Legislative action in Minnesota 1996 and 1997
  • Minnesota Birth Defects Surveillance System 1997 Report to the Legislature - excerpts

 

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