Bearder v. State of Minnesota was brought by nine families who wanted the state to obrtain written informed consent to collect, store or use infants' blood samples. The lawsuit was spearheaded by the Citizens’ Council for Health Freedom in St Paul.
IT'S MY DNA!
Baby DNA and Newborn Screening
...[M]ost parents are completely stunned when they find out that their child's blood is being held by the State. They have no recollection and they think it's unlawful.
Dr. Sharon Kardia, University of Michigan, September 23, 2009.
Photo from 2005 MN Department of health provider manual
One FL baby says "Help! The Gov't Has My DNA"
Newborn screening is the most widely performed type of genetic testing in the United States today. . . . Most states, including New York, do not require parental consent. . . .
Most newborn screening programs, including New York's program, store residual newborn blood samples (bloodspots) and use them for research.
"Genetic Testing and Screening in the Age of Genomic Medicine (Exec. Summary), NY Dept. of Health.
Whether you like it or not, a complete [genomic] sequencing of newborns is not far away.
Francis Collins, Director, National Institutes of Health, October 26, 2009
St. Paul/Minneapolis—Today, the Minnesota Department of Health issued a press release on their plan to begin destroying baby DNA as required by the Minnesota Supreme Court. Twila Brase, president of Citizens' Council for Health Freedom, provides the following comments:
The Minnesota Supreme Court has ruled that the Minnesota Department of Health is violating the Minnesota Genetic Privacy Law with its storage, use and dissemination of newborn screening test results and newborn DNA.
Twila Brase, president of CCHF, discusses the privacy implications of newborn genetic testing and State warehousing of Baby DNA, including State ownership of the DNA of every newborn citizen.
On March 1, 2011, the Minnesota Supreme Court heard arguments on the nine-family lawsuit against the MN Dept of Health for the collection, storage, use, and dissemination of newborn DNA without the consent or knowledge of parents.