IT'S MY DNA!

 

Baby DNA and Newborn Screening

...[M]ost parents are completely stunned when they find out that their child's blood is being held by the State. They have no recollection and they think it's unlawful.

Dr. Sharon Kardia, University of Michigan, September 23, 2009.

 

Photo from 2005 MN Department of health provider manual

 



One FL baby says "Help! The Gov't Has My DNA"

Newborn screening is the most widely performed type of genetic testing in the United States today. . . . Most states, including New York, do not require parental consent. . . .

Most newborn screening programs, including New York's program, store residual newborn blood samples (bloodspots) and use them for research.

"Genetic Testing and Screening in the Age of Genomic Medicine (Exec. Summary), NY Dept. of Health. 

 

Whether you like it or not, a complete [genomic] sequencing of newborns is not far away.

Francis Collins, Director, National Institutes of Health, October 26, 2009

 
 

10-PART OVERVIEW

 

Settlement Reached in Minnesota Case 
of Baby DNA Stored Without Consent

Settlement Reached in Minnesota Case 
of Baby DNA Stored Without Consent

ST. PAUL, Minn.—The start of 2014 marks a victory for the protection of private genetic data with the settlement of a lawsuit between 21 Minnesota families and the Minnesota Department of Health. The multi-year case argued the illegal and improper storage and use of newborn blood samples and genetic test results obtained under the Newborn Screening Program by the state health department. The ruling is in favor of the 21 plaintiffs, and now the blood samples and test results obtained without consent must be destroyed.

Destruction of Newborn Genetic Test Results Still Has NOT Begun in Minnesota

Destruction of Newborn Genetic Test Results Still Has NOT Begun in Minnesota

ST. PAUL, Minn.This past Saturday was supposed to mark the first day that baby genetic test result destruction was to begin in Minnesota, marking a historic victory for the protection of private medical information and genetic privacy.

Obama’s Phony October 1 “Deadline”

Obama’s Phony October 1 “Deadline”

October 1 is a phony deadline. Ignore it. Nobody has to sign up for Obamacare. Absolutely nothing has to happen on October 1. Instead, October 1 is the first day to refuse to enroll in Obama's exchanges (refuse2enroll.org). In six days, you can begin your own personal Obamacare resistance campaign. Our motto: Resist. Repeal. Reclaim.

Federal Genetic Profiling of Newborns?

Federal Genetic Profiling of Newborns?

The government wants every baby’s genetic code. Today the National Institutes of Health announced federal grants totaling $25 million over five years to four institutions to develop a process to sequence the genome – the DNA – of every child at birth.

States Build Patient-Tracking Systems

States Build Patient-Tracking Systems

"The NSA is not the only agency specializing in surveillance. State government health officials are profiling children and cataloging citizens in massive government databases without the patient's or parent's consent. That's the gist of our new 50-state report, released last week:"Patient Privacy and Public Trust: How Health Surveillance Systems are Undermining Both."

CCHF Research Shows State Cancer, Vaccination Registries Are Actually Surveillance Systems

CCHF Research Shows State Cancer, Vaccination Registries Are Actually Surveillance Systems

ST. PAUL, Minn.— For the past eight years, Citizens’ Council for Health Freedom has been researching health departments in all 50 states to find out how they use funding from the federal government to obtain and store citizens’ private medical information—in most cases, without patients’ consent.

50-State Report Unveiled; States Track Medical Data from Birth to Death Without Consent

50-State Report Unveiled; States Track Medical Data from Birth to Death Without Consent

Today, Citizens’ Council for Health Freedom is releasing the findings of one of its most important works to date. For the past eight years, CCHF has been researching health departments in all 50 states to find out how they use funding from the federal government to obtain and store citizens’ private medical information—in most cases, without patients’ consent.

50-State Health Surveillance Report

50-State Health Surveillance Report

CCHF has release a new Policy Insights Report:  "Patient Privacy and Public Trust: How Health Surveillance Systems Are Undermining Both" Written by Twila Brase, President of CCHF, it reveals the scope and hidden nature of state government health surveillance systems. Using a variety of methods over eight years, CCHF gathered data from all 50 states and D.C. on four major government patient-tracking systems. This data has now been published by CCHF to alert the public to government surveillance and to urge state legislative action to protect individual privacy and consent rights.

CCHF Announces Genetic Privacy Victory

CCHF Announces Genetic Privacy Victory

The Citizens’ Council for Health Freedom (CCHF, www.cchfreedom.org) announced a huge victory today with the defeat of Senator John Marty’s (D-Roseville) newborn screening language.

MN Dept. of Health Registries

MN Dept. of Health Registries

This is a list of all the data the MN Department of Health collects and how they use it.