Patient Privacy
Medical Privacy
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April 14, 2003
The federal medical privacy rule is commonly known as the "HIPAA privacy rule." However, it actually holds the title, "Standards for Privacy of Individually Identifiable Health Information."
Personal Data Required to Apply for Obamacare in ACA Exchanges
Exchange Coverage Application Form – Single Adult, Not Offered Employer Coverage
Tracking is a favorite federal activity. Two bills in Congress would create prescription-tracking systems, ostensibly to identify and locate counterfeit drugs: a bipartisan 85-page House bill and a bipartisan 107-page Senate bill.
Public Documents
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April 23, 2013
Capital Asset Summary for the Dept. of Health and Human Services for the IT Data management and data warehouse information system that will function as " the perpetual central repository for capturing, aggregating, and analyzing information on health insurance coverage... The data warehouse is formally known as Multidimensional Insurance Data Analytics System (MIDAS) and is built on industry leading analytics, data warehousing and business intelligence (BI) technologies."
Four months into the legislative session, and after many requests, the Minnesota Department of Health has provided the state legislature with a list of all the genetic information (biological specimens and health data) that they have been collecting, using, storing and disseminating without legislative authority or individual written consent -- as required by the Minnesota Genetic Privacy Act (M.S. 13.386). The list was provided shortly before a floor vote on April 18 to give MDH retrospective legal protection against MGPA violation lawsuits as well as prospective authority to collect, store, use and share any and all genetic information on individuals without the individual's consent, long into the future.
The FIRST PAGE includes data that the statutes allow. The SECOND AND THIRD page is DNA and data they've collected and used by making up their own rules. There may be a statute listed, but it doesn't give them express authority to do what they've been doing in violation of the law. HF 695 and SF 745 will protect them from lawsuits forever...and give MDH ownership claims to the DNA of citizens. PETITION: http://bit.ly/SayNoDNABiobank
On April 10, 2013, CCHF Presidenta Twila Brase spoke at a press conference hosted by Rep. Peggy Scott opposing the creation of a DNA BioBank by the state of Minnesota. She was joined Dr. Michelle Goodwin, a Bioethics professor from the U of M, and several other members of the MN House and Senate.
Press Releases
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April 09, 2013
The Citizens’ Council for Health Freedom (CCHF, www.cchfreedom.com) has discovered a newly created federal system of records. The system, called the “Health Insurance Exchange Program,” was finalized by the Centers for Medicare and Medicaid Services (CMS) on March 6, 2013 and will house much of each state’s health insurance exchange information, including personally identifiable information, private health data, employment and insurance data, and qualified employer information in a single, federal records system.
Press Releases
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March 21, 2013
CCHF maintains that the speed of implementation will result in insufficient data protections in a PPACA technology infrastructure that is a rich target for data thieves and that patient data will be compromised, and therefore implementation must be halted until patient data security can be assured.
Minnesota Reports
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February 26, 2013
The Minnesota healthcare exchange is not a marketplace. It is not, as some have called it, a “one-stop-shopping” place for health insurance or “Travelocity.” The MN Exchange, being built under DFL Governor Mark Dayton’s executive order, and now advancing through legislation, has been called the “Minnesota Insurance Marketplace.”
Issues
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January 31, 2013
Buried in the text of the Minnesota Obamacare Exchange bill (MNHIX) has a tiny but controversial section allowing free-flow sharing of all data the government has on you. It also grants them access to the date “other entities” have on you. There is no limit to the agencies that can share data. There is no limit to the data that can be shared. There is no limit with whom the data may be shared.
HIPAA - the Federal Medical Privacy Rule
