CCHC releases "Newborn Rights" notification to assist parents of new babies during hospitalization

Nine Families Sue State of Minnesota

CCHC Urges Governor Pawlenty to Take Positive Action

We are disappointed that the Governor did not assure the public that he will protect the genetic privacy rights of children and families. Unfortunately he did not state that he will require his health commissioner to comply with the Minnesota genetic privacy law's consent requirements for the storage, use and dissemination of baby DNA. And importantly, he did not assure the public that he will not sign the health department's proposed bill to eliminate those consent rights that in law today.

Minnesota Department of Health Continues to Store Baby DNA without Required Parent Consent; Violates Genetic Privacy Law…and Governor’s Veto

Despite Governor Pawlenty’s veto of the health department’s DNA warehousing bill last legislative session…we have confirmed that the Minnesota Department of Health is continuing to warehouse baby DNA without parent consent. This is a direct violation of the genetic privacy and DNA property rights of parents and children

Daschle pick signals Obama's plan to resurrect national health care

Mr. Obama's choice for Secretary of HHS signals a plan to eliminate free-markets and resurrect national health care.

National Patient ID Would Violate Patient Privacy Rights

Congress must dismiss the data industry's apparent call to centralize, nationalize and socialize private medical information. American privacy rights must be protected from those who wish to impose corporate agendas including unconsented data sharing, patient and doctor profiling, health surveillance, research, and industry profiteering

CCHC Releases New Report Challenging State Newborn Screening Programs

Revealing the untold history of government-mandated PKU testing, which has harmed children and increased the incidence of mental retardation, the CCHC report also cites the concerns of experts regarding the current expansion of newborn genetic testing by state legislatures and health departments.

"Wired Act" Threatens Patient Care and Privacy - U.S. Senate Could Vote Today

Americans should contact their U.S. Senators to oppose S.1693, the "Wired for Health Care Quality" Act, according to Citizens' Council on Health Care (CCHC). A vote is expected today in the U.S. Senate.

MEDNET USA's Linking of Private Patient Data to National Health Information Network is a Violation of Privacy and Data Control Rights

"Patient data is private data. No patient's private medical and mental health should be placed online and made electronically available nationwide without that patient's informed written consent," says Twila Brase, president of CCHC.

Gov. Pawlenty Protects Genetic Privacy Rights Vetoes "DNA Warehouse" Bill

In a letter dated today View Here, Governor Tim Pawlenty writes that he has vetoed S.F. 3138, the genetic information and DNA bill. S.F. 3138 would have eliminated current informed parent consent requirements for government storage, use, and dissemination of newborn citizen blood and DNA.
Governor Pawlenty's VETO Letter, 5/20/08

CCHC Asks Governor to Veto Baby "DNA Warehouse" Bill

Today, the Minnesota House and Senate voted to eliminate current informed parent consent rights for the storage, use and dissemination of newborn citizen DNA.