NewStatement of the ACLU of Minnesota In Opposition to HF 2526

Statement of the ACLU of Minnesota In Opposition to HF 2526
The ACLU of Minnesota opposes HF 2526.  This bill represents a dangerous effort to enable unlimited retention and minimize parental consent, allowing newborn blood samples to be used at the whim of the government and researchers, rather than through the consent of the newborn and their family.

NewTwila Brase Testimony on "Repeal Genetic Privacy" Bill

Twila Brase Testimony on 'Repeal Genetic Privacy' Bill
Newborn screening  is the “largest single application of genetic testing in medicine,” as stated by Dr. Jeffrey Botkin, MD, MPH, at the University of Utah’s Department of Pediatrics and Medical Ethics.  Also, I’d like to draw to your attention the written testimony submitted by the Council for Responsible Genetics,  which opposes this bill saying it’s in opposition to recommendations by national committees and research   studies.

01/16/13 - CCHF Testimony on SF 1 - Minnesota Insurance Marketplace Act

01/16/13 - CCHF Testimony on SF 1 - Minnesota Insurance Marketplace Act

"The bill title says that this is a marketplace but according to the bill on line 2.21 the marketplace is created as a board ... Just the fact that we keep talking about a marketplace is problematic to our organization because it is actually a state board ... but the really big deal is to understand that it is the largest data sharing system in the history of this country and it will be the largest data sharing system in the history of this state."

Hearing on Implementation of Health Insurance Exchanges and Related Provisions

Hearing on Implementation of Health Insurance Exchanges and Related Provisions

Sent in: September 26, 2012 - This letter provides a summary of at least 15 reasons our organization supports the repeal of the health insurance exchanges provisions in the PPACA, the defunding of all exchange establishment and IT grants, the end of all funding for state, federal or federally-facilitated exchanges, the end of all funding for the Federal Data Services Hub, and ultimately, the repeal of the entire PPACA.

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