CCHC Report from Washington, D.C.

Twila Brase, president of Citizens’ Council on Health Care, was in Washington, D.C. for four days in 2009, meeting directly with Members of Congress and also with staff members.

Newborn Genetic Screening - The New Eugenics?

Increasingly, the specter of eugenics has emerged over State government newborn genetic screening programs. For example, The Changing Moral Focus of Newborn Screening, the December 2008 report issued by The President’s Council on Bioethics, states: “...At what point have we crossed the line from legitimate family planning to capricious and morally dubious eugenics?"

"Evidence-Based Medicine": Rationing Care, Hurting Patients

Evidence is said to be the new bright star of health care. A growing chorus of voices is calling for physicians and other health care clinicians to follow “evidence-based medicine” (EBM) or so-called “best practices.” To practice EBM, proponents say doctors must follow evidence-based clinical practice guidelines.

The Untold PKU Story Challenges Newborn Screening Mandate

Newborn screening advocates often refer to the newborn PKU (phenylketonuria) test as evidence of the benefit of screening—and as a rationale for compulsory testing of newborns nationwide. However, a brief look into the history of PKU testing challenges these assertions. Inaccurate test results, harmed children, untested treatments, and an increase in mental retardation mark the untold PKU story.

A Critical Analysis of Proposed 'Newborn Screening Saves Lives Act of 2007'

Genetic privacy, parent consent and individual self-determination rights are at stake with the U.S. Senate’s recent passage of S. 1858, the ‘Newborn Screening Saves Lives Act of 2007.’ This paper outlines five key issues of concern.

EBM: How Technocrats are Taking Over the Practice of Medicine

Looming on the visible horizon of American health care is  new attempt to control the practice of medicine and limit—indeed ration—patient access to health care services. While doctors often refer to it as "cookbook medicine," this quickly advancing strategy is best known by the name "evidence-based medicine" (EBM).