Public Comments • Jan 2016 • Storing and Using Newborn DNA—Without Parent Consent

CCHF NIH Common Rule Comments Jan 4, 2016

Citizens’ Council for Health Freedom, a national organization existing to support individual health care choices, individualized patient care, and medical and genetic privacy, is actively engaged in protecting the right of citizens to consent or to refuse to consent to the collection, storage, use and sharing of private information for research or other purposes, including biospecimens, and in particular, newborn DNA collected by state government agencies as part of the 50 state government newborn screening programs.

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