National Reports • Mar 2008 • Storing and Using Newborn DNA—Without Parent Consent • Genetics • Human Subjects Research • Medical Records • Population Health Care

A Critical Analysis of Proposed 'Newborn Screening Saves Lives Act of 2007'

Genetic privacy, parent consent and individual self-determination rights are at stake with the U.S. Senate’s recent passage of S. 1858, the ‘Newborn Screening Saves Lives Act of 2007.’ This paper outlines five key issues of concern.

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