Medical Records

NewCCHF Letter to US Senate Opposing National Patient ID

CCHF Letter to US Senate Opposing National Patient ID

CCHF, along with 25 other individuals and organizations representing American citizens nationwide, sent a letter to Congressional leadership and Members of the Appropriations Committee February 10, 2022, to express strong opposition to ending the longstanding prohibition on funding and development for the controversial, and very troubling, federal Unique Patient Identifier (UPI). See the letter here.

Landmark Henrietta Lacks Settlement a Win for Genetic Ownership

Landmark Henrietta Lacks Settlement a Win for Genetic Ownership

ST. PAUL, Minn. — Last week, the family of Henrietta Lacks and their legal team announced that a confidential settlement with biotech giant Thermo Fischer Scientific had been reached. Ms. Lacks had not provided her consent before her cells were used for medical research over the span of decades. 

President Biden Promotes Harmful Reproductive Agenda

President Biden Promotes Harmful Reproductive Agenda

ST. PAUL, Minn. — In April, following an Executive Order, the HHS Office of Civil Rights proposed the HIPAA Privacy Rule to Support Reproductive Health Care Privacy to shield perpetrators of and participants in abortion under a broad and imprecise definition of “reproductive health care.” 

Don’t Share My Cancer Data!

Don’t Share My Cancer Data!

CANCER PATIENT DATA TO CDC? The Minnesota legislature is planning to open the Minnesota Cancer Surveillance System to all 50 state governments and the federal government. The surveillance system is itself a violation of patient rights, but if passed into law, the data will be shared with the CDC’s National Program of Cancer Registries and the National Cancer Institute’s Surveillance, Epidemiology, and End Results Program registry.

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CCHF Sends FOI Request to Office of Civil Rights Regarding Patients Refused Care for Declining to Sign HIPAA Notice

CCHF Sends FOI Request to Office of Civil Rights Regarding Patients Refused Care for Declining to Sign HIPAA Notice

CCHF has submitted a FOIA request to the Office of Civil Rights (OCR). Our request asks for any documentation that OCR has received or sent to physicians and other providers regarding providing care to patients who refuse to sign the HIPAA Notice of Privacy Practices. Our goal with this request is to understand any abuses that are happening under the law, as well as to better equip patients to decline to sign the Notice of Privacy Practices.

TAKE ACTION — Protect Newborn Privacy and Parental Consent

TAKE ACTION — Protect Newborn Privacy and Parental Consent

ALERT: Congress returns November 14. In these last weeks of 2022, a parent-consent battle is taking place in Washington, D.C. Proponents of government newborn (genetic) screening want Congress to pass the Newborn Screening Saves Lives Reauthorization Act (H.R. 482) before 2023 -- with no parental consent requirements for researcher use of newborn DNA, which has been stored by states without parent consent. Ask Congress to require parent consent. CLICK HERE to send a quick message.  

Hospital Price Transparency

Hospital Price Transparency

Despite a federal law that mandates that hospitals display the costs of their services and treatments to patients, less than 15% of hospitals do so. This legislation provides protections to patients who are unaware of the costs (due to a failure of the hospital to comply with price transparency laws) associated with their treatment costs.

CCHF responds to HHS Request on COVID MISINFORMATION

CCHF responds to HHS Request on COVID MISINFORMATION

The U.S. Surgeon General issued a Request for Information (RFI) on Covid MISINFORMATION and CCHF responded. We pointed to the government itself being the purveyor of DISINFORMATION. They asked for NAMES and we obliged: Fauci, NIH, Birx, President Biden, Pharm, CDC, etc. Our response is now part of the official public record of the RFI. Click this link to submit your own comments for this request no later than Monday, MAY 2, 2022.

Right of Hospitalized Patients to Receive Treatment from Their Own Doctors

Right of Hospitalized Patients to Receive Treatment from Their Own Doctors

A bill to protect a patient's right to be treated by their regular physician when admitted to a hospital. Establishing protection for physicians to treat their patients even if a patient has been admitted to a hospital where that physician is not employed.

ACTION ALERT — Tell Your Senator to Stop National Patient ID!

ACTION ALERT — Tell Your Senator to Stop National Patient ID!

Congress is deciding right now whether to fund a National Patient ID – a single, federally-issued number that links all your medical records together. This “Unique Patient Identifier” has been prohibited for more than 20 years due to concerns about patient privacy, personal autonomy and the national security risks associated with centralized databases of personal information. Click here to send the key decisionmakers and your U.S. Senators a message asking them NOT to fund a National Patient ID.