Medical Records
National Reports
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February 15, 2022
CCHF, along with 25 other individuals and organizations representing American citizens nationwide, sent a letter to Congressional leadership and Members of the Appropriations Committee February 10, 2022, to express strong opposition to ending the longstanding prohibition on funding and development for the controversial, and very troubling, federal Unique Patient Identifier (UPI). See the letter here.
Press Releases
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August 08, 2023
ST. PAUL, Minn. — Last week, the family of Henrietta Lacks and their legal team announced that a confidential settlement with biotech giant Thermo Fischer Scientific had been reached. Ms. Lacks had not provided her consent before her cells were used for medical research over the span of decades.
Press Releases
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August 01, 2023
ST. PAUL, Minn. — In April, following an Executive Order, the HHS Office of Civil Rights proposed the HIPAA Privacy Rule to Support Reproductive Health Care Privacy to shield perpetrators of and participants in abortion under a broad and imprecise definition of “reproductive health care.”
Action Alerts
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March 16, 2023
CANCER PATIENT DATA TO CDC? The Minnesota legislature is planning to open the Minnesota Cancer Surveillance System to all 50 state governments and the federal government. The surveillance system is itself a violation of patient rights, but if passed into law, the data will be shared with the CDC’s National Program of Cancer Registries and the National Cancer Institute’s Surveillance, Epidemiology, and End Results Program registry.
Read more...
CCHF has submitted a FOIA request to the Office of Civil Rights (OCR). Our request asks for any documentation that OCR has received or sent to physicians and other providers regarding providing care to patients who refuse to sign the HIPAA Notice of Privacy Practices. Our goal with this request is to understand any abuses that are happening under the law, as well as to better equip patients to decline to sign the Notice of Privacy Practices.
Action Alerts
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October 19, 2022
ALERT: Congress returns November 14. In these last weeks of 2022, a parent-consent battle is taking place in Washington, D.C. Proponents of government newborn (genetic) screening want Congress to pass the Newborn Screening Saves Lives Reauthorization Act (H.R. 482) before 2023 -- with no parental consent requirements for researcher use of newborn DNA, which has been stored by states without parent consent. Ask Congress to require parent consent. CLICK HERE to send a quick message.
Model Legislation
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August 24, 2022
Despite a federal law that mandates that hospitals display the costs of their services and treatments to patients, less than 15% of hospitals do so. This legislation provides protections to patients who are unaware of the costs (due to a failure of the hospital to comply with price transparency laws) associated with their treatment costs.
Announcement
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April 28, 2022
The U.S. Surgeon General issued a Request for Information (RFI) on Covid MISINFORMATION and CCHF responded. We pointed to the government itself being the purveyor of DISINFORMATION. They asked for NAMES and we obliged: Fauci, NIH, Birx, President Biden, Pharm, CDC, etc. Our response is now part of the official public record of the RFI. Click this link to submit your own comments for this request no later than Monday, MAY 2, 2022.
Model Legislation
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March 25, 2022
A bill to protect a patient's right to be treated by their regular physician when admitted to a hospital. Establishing protection for physicians to treat their patients even if a patient has been admitted to a hospital where that physician is not employed.
ACTION ALERT — Tell Your Senator to Stop National Patient ID!
Action Alerts
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March 03, 2022
Congress is deciding right now whether to fund a National Patient ID – a single, federally-issued number that links all your medical records together. This “Unique Patient Identifier” has been prohibited for more than 20 years due to concerns about patient privacy, personal autonomy and the national security risks associated with centralized databases of personal information. Click here to send the key decisionmakers and your U.S. Senators a message asking them NOT to fund a National Patient ID.
CCHF Letter to US Senate Opposing National Patient ID
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