America’s Health Care System Increasingly Unsafe

ST. PAUL, Minn.—The blue and white “H” signs signifying a nearby hospital should be symbols of safety and help for those in need of medical care. But increased privacy intrusions, growing threats to parental rights, and encroaching government regulations that diminish quality of care have all contributed to making our nation’s health care system an increasingly unsafe place for Americans. 

House to Vote Tuesday on Newborn Blood Screening without Parental Consent

ST. PAUL, Minn.—The U.S. House of Representatives will vote on Tuesday on the Newborn Screening Saves Lives Reauthorization Act of 2014 (H.R.1281), which would extend for five years the funding program that allows states to collect and store newborn DNA without parental consent.

Babies Die from Federal Medical Experiments

Federal officials are defending an unconscionable act. Between 2005 and 2009, the National Institutes of Health (NIH) supported research on 1,316 premature newborns without requiring parents to be told their baby could die and the baby’s oxygen monitor would not show their child’s true oxygen level. 

ACLU opposes new law allowing state to keep newborn blood samples

A bill signed into law earlier this week by Gov. Mark Dayton allows the health department to collect and store blood samples taken from newborn babies for an indefinite period of time, unless parents opt-out of the program.

Governor Mark Dayton Signs Bill Repealing Parental Consent, Genetic Privacy Rights for Newborn Babies

Minnesota House Rejects Parental Consent and Genetic Privacy Rights for Newborn Babies

Citizens’ Council for Health Freedom (CCHF, www.cchfreedom.org) released the following statement after the Minnesota State House voted 69-58 yesterday to repeal genetic privacy for newborns and allow the state to collect and store newborn DNA without parental consent.
 

Minnesota Senate Votes to Eliminate Genetic Privacy Rights for Newborn Babies

The Citizens’ Council for Health Freedom (CCHF, www.cchfreedom.org) released the following statement after the Minnesota State Senate voted yesterday to repeal genetic privacy for newborns and allow the state to collect and store newborn DNA without parental consent. The vote was on bill S.F. 2047, the Newborn Screening Program Modification.
 

Government Warehousing of DNA a Disturbing State Secret

As parents happily hold their newborn babies and dream of watching them grow up, the government is silently storing their DNA for use in research and analysis, all without parental consent.
 

5 Reasons to Oppose Baby DNA Bill

This bill undermines the Nov. 2011 MN Supreme Court decision on parent control over newborn genetic information, and the consequent 2012 amendments to require parent consent. The focus of this bill is not newborn screening; it’s on what happens to the child’s DNA and genetic test results post-screening.

SF 2047 Testimony by Council for Responsible Genetics

". . . We stand in strong opposition to SF 2047.  We believe this bill is against the interests of parents in making a truly informed choice about whether the state of Minnesota shall permanently retain and use their children's personal genetic information . . . "