Minnesota Supreme Court Ruling Favors Genetic Privacy
The Minnesota Supreme Court today issued a ruling in support of the 9-famiies who sued the Minnesota Department of Health for violation of the state genetic privacy law.
IT'S MY DNA!
Storing and Using Newborn DNA—Without Parent Consent
NEWBORN SCREENING
REFUSAL / OPT-OUT FORMS
NEWBORN SCREENING
BLOODSPOT
DESTRUCTION FORMS
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Maine
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Minnesota
NEWBORN SCREENING ADDITIONAL INFORMATION LINKS
Private Newborn Screening Options
TAKE ACTION - Find Out How Your Baby's DNA is Being Used
50 State CHART - How Long State Government Keeps Your Baby's DNA (2001 to present)
50 States & DC - Newborn Screening Laws
CCHF Reports on Newborn Screening Nationwide
Protect Your Baby at the Hospital - MN "Newborn Rights" Sign to Post After Birth
"[M]ost parents are completely stunned when they find out that their child's blood is being held by the State. They have no recollection and they think it's unlawful."
Dr. Sharon Kardia, University of Michigan, September 23, 2009.
Photo from 2005 MN Department of health provider manual
One Florida baby says "Help! The Gov't Has My DNA"
Newborn screening is the most widely performed type of genetic testing in the United States today. . . . Most states, including New York, do not require parental consent. . . .Most newborn screening programs, including New York's program, store residual newborn blood samples (bloodspots) and use them for research.
"Genetic Testing and Screening in the Age of Genomic Medicine (Exec. Summary), NY Dept. of Health.
Whether you like it or not, a complete [genomic] sequencing of newborns is not far away.
Francis Collins, Director, National Institutes of Health, October 26, 2009
10 PART OVERVIEW - Newborn Genetic Screening, Baby DNA Warehousing Government Research & No Parent Consent
Doctors' Townhall in Nashville
Twila Brase, president of CCHF, discusses the privacy implications of newborn genetic testing and State warehousing of Baby DNA, including State ownership of the DNA of every newborn citizen.
Baby DNA Lawsuits
On March 1, 2011, the Minnesota Supreme Court heard arguments on the nine-family lawsuit against the MN Dept of Health for the collection, storage, use, and dissemination of newborn DNA without the consent or knowledge of parents.
Baby DNA Appeal Decision 2010
Because the testing of newborn blood is authorized by the newborn screening statute for public-health reasons, a party whose blood was collected, retained, used, or disseminated in accordance with that statute may not assert a separate tort action or constitutional claims of improper governmental taking or invasion of privacy for that conduct.
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Health Privacy Alert!
HIPAA DOES NOT PROTECT PRIVACY... AND YOU ARE
NOT REQUIRED TO SIGN HIPAA "PRIVACY" FORMS
By federal law, you are not required to sign the clinic or hospital HIPAA "Privacy" form (or the Acknowledgement of the Notice of Privacy Practices embedded in consent forms)...even if the clinic tries to insist that you must.
ACA - "Obamacare"
Medical or Health Care Sharing
Patient Privacy
Baby DNA Warehousing
Health Insurance Exchange
REAL ID - Federal Control
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