Patient Privacy

HIPAA - the Federal Medical Privacy Rule

The federal medical privacy rule is commonly known as the "HIPAA privacy rule." However, it actually holds the title, "Standards for Privacy of Individually Identifiable Health Information."

Summary of Five Ideas for a Patient Rights Bill

This is a one-page summary of five pieces of state-based legislation published within our Model State Legislation Library that you could use to create a bill of patients rights under a declared emergency, in the exam room and at the hospital.

TAKE ACTION — Stop the National Patient ID

ALERT: As Congress considers year-end funding, the risk of creating a UNIQUE PATIENT IDENTIFIER (UPI) resurfaces. A UPI is a single federal number that would be used to track patients and digitally link all the confidential details of a person’s entire health history and medical record together. URGENT ACTION NEEDED: Please contact the members of the U.S. Senate Appropriations Committee and your U.S. Senators and ask them to uphold the long-standing BAN on the establishment of and funding for the UPI. CLICK HERE to send a quick message.  

A Win for Genetic Ownership

Who owns your blood, your cells, your genetic material? 
 
Those who have followed the complicated story of Henrietta Lacks since her death in 1951 know that, at its core, the case is about genetic ownership. Ms. Lacks did not provide her consent before her cells were sold and used for medical research over the span of decades...

Landmark Henrietta Lacks Settlement a Win for Genetic Ownership

ST. PAUL, Minn. — Last week, the family of Henrietta Lacks and their legal team announced that a confidential settlement with biotech giant Thermo Fischer Scientific had been reached. Ms. Lacks had not provided her consent before her cells were used for medical research over the span of decades. 

President Biden Promotes Harmful Reproductive Agenda

ST. PAUL, Minn. — In April, following an Executive Order, the HHS Office of Civil Rights proposed the HIPAA Privacy Rule to Support Reproductive Health Care Privacy to shield perpetrators of and participants in abortion under a broad and imprecise definition of “reproductive health care.” 

Biden Promotes Reproductive Agenda — Exposes HIPAA and Defies State Law!

The Biden Administration continues to defy reason and logic…and the law. Recently, President Biden proposed the HIPAA Privacy Rule to Support Reproductive Health Care Privacy to shield the perpetrators of and participants in abortion and gender treatment (generally referred to as “reproductive health care”)...

State Legislators are Calling CCHF

Montana’s New Genetic Privacy Law

ST. PAUL, Minn. — On June 7, Montana Governor Greg Gianforte signed SB 351, the Genetic Information Privacy Act, into law. Companies like Ancestry.com and 23andMe must now obtain consent before sharing genetic data with third parties (e.g., police, researchers).  

Proposed Minnesota Health Bill Violates Patient Privacy Rights

ST. PAUL, Minn. — Citizens’ Council for Health Freedom says the Minnesota Senate Judiciary has failed to review the impact of the pending Senate omnibus health care bill on the privacy and civil rights of Minnesotans. 

In a letter to Minnesota Senator Ron Latz (D-St. Louis Park), Chair of the Senate Judiciary and Policy Safety Committee, which was hand-delivered to his office on Monday, April 3, CCHF laid out provisions in Senate File 2995 related to the collection and storage of individual’s data without the individual’s consent.