Human Subjects Research
Press Releases
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August 03, 2015
ST. PAUL, Minn.—Health care is an always-moving, always-changing entity, with new developments every day—some of which compromise patients’ private medical information, as well as the care their doctors can offer them.
A bill moving quickly in Congress will authorize millions of corporate and government outsiders to have access to private patient records for analysis and research without patient consent. The U.S. House Energy and Commerce (E&C) Committee will vote the week of May 18, 2015 on the 21st Century Cures Act, authored by Chairman Fred Upton (R-MI). To protect your privacy and your health freedom and for a list of members to call in Congress, click Read More!
Press Releases
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December 09, 2014
ST. PAUL, Minn.—The U.S. Senate last night passed an Amendment to the “Newborn Screening Saves Lives Reauthorization Act of 2014” (H.R. 1281) that will take a necessary step to protect babies’ private genetic data and ensure that parents are informed about their newborn’s screening blood spots and how they will be used.
eNews Commentary
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June 05, 2014
Federal officials are defending an unconscionable act. Between 2005 and 2009, the National Institutes of Health (NIH) supported research on 1,316 premature newborns without requiring parents to be told their baby could die and the baby’s oxygen monitor would not show their child’s true oxygen level.
Press Releases
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June 02, 2014
ST. PAUL, Minn.—As schoolchildren in Florida prepare for the exciting end of the year, their parents can celebrate a victory and breathe a sigh of relief, too.
Press Releases
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May 07, 2014
Citizens’ Council for Health Freedom (CCHF, www.cchfreedom.org) released the following statement after Governor Mark Dayton signed a bill yesterday allowing the state to collect and store DNA without parental consent.
Press Releases
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January 13, 2014
ST. PAUL, Minn.—The start of 2014 marks a victory for the protection of private genetic data with the settlement of a lawsuit between 21 Minnesota families and the Minnesota Department of Health. The multi-year case argued the illegal and improper storage and use of newborn blood samples and genetic test results obtained under the Newborn Screening Program by the state health department. The ruling is in favor of the 21 plaintiffs, and now the blood samples and test results obtained without consent must be destroyed.
Press Releases
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November 18, 2013
ST. PAUL, Minn.—This past Saturday was supposed to mark the first day that baby genetic test result destruction was to begin in Minnesota, marking a historic victory for the protection of private medical information and genetic privacy.
Press Releases
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August 21, 2013
Today, Citizens’ Council for Health Freedom is releasing the findings of one of its most important works to date. For the past eight years, CCHF has been researching health departments in all 50 states to find out how they use funding from the federal government to obtain and store citizens’ private medical information—in most cases, without patients’ consent.
This is a list of all the data the MN Department of Health collects and how they use it.