Please Share Your “HIPAA Hurt Me” Story

Please SHARE YOUR STORY about refusing to sign HIPAA. This means the HIPAA privacy form or the HIPAA acknowledgement statement signifying receipt of the Notice of Privacy Practices (NPP).

We need as many stories about what happens when patients refuse to sign the form, as they are lawfully allowed to do, particularly if you are denied care, made to feel bad, made to miss your appointment or are hurt in any other way. Or perhaps you’re a practitioner and your hospital or ACO system is requiring you to deny care to those who exercise their right to refuse.

HIPAA Hurt Me

By law, you have a RIGHT to REFUSE to sign the HIPAA Form and the HIPAA acknowledgement statement signifying receipt of the Notice of Privacy Practices (NPP). The federal government has publicly stated that you have a right to refuse, and no law requires your signature. This includes the right to refuse to sign the form or statement even after the hospital or clinic staff writes “refused” on it.

NOTE: Refusing to sign does not provide you with any privacy protection. Under HIPAA, according to the federal government, there are potentially 2.2 million entities (including 1.5 million "business associates") that could be given access to your private data without your consent.

However, if you do NOT sign, and if your data is then broadly shared without your consent and you complain about the disclosure or use of your data, the clinic staff or attorneys will not be able to say that you signed the form acknowledging that you know your data can be shared broadly under HIPAA. The staff will not be able to tell you that it was your responsibility not to share confidential data with your doctor. They will not be able to blame YOU for sharing data that they disclose without your consent.

If you refuse to sign the HIPAA privacy form, some clinics or doctors or hospitals may refuse to provide treatment to you or your children. This is in clear violation of your rights — but we have discovered that they may not know you have that right. Be gentle but firm. Consider contacting us to request wallet-size cards to give to the staff.

NOTE: The U.S. Department of Health and Human Services has a web page that says exactly what the clinic and hospital are supposed to do when you lawfully refuse to sign the HIPAA form or the HIPAA acknowledgement statement.

CLICK HERE TO SHARE YOUR STORY

 

CCHF Implores Government to Restore Pre-HIPAA Rights

CCHF Implores Government to Restore Pre-HIPAA Rights

ST. PAUL, Minn.—For much of its 20-plus-year existence, Citizens’ Council for Health Freedom (CCHF) has worked to educate patients, policy makers, the media, medical professionals and even Congress that the Health Insurance Portability and Accountability Act (HIPAA) “Privacy Rule” isn’t about privacy at all. 

‘Big Brother in the Exam Room’ a Finalist for Two Midwest Book Awards

‘Big Brother in the Exam Room’ a Finalist for Two Midwest Book Awards

ST. PAUL, Minn.Big Brother in the Exam Room: The Dangerous Truth About Electronic Health Records,” written by Citizens’ Council for Health Freedom (CCHF) president and co-founder Twila Brase, RN, PHN, is a finalist for two separate Midwest Book Awards. UPDATE: On May 4, the book WON the "Social Issues/Political Issues/Culture" category!

 

‘Big Brother in the Exam Room’ Wins Literary Award

‘Big Brother in the Exam Room’ Wins Literary Award

ST. PAUL, Minn.—Reader Views announced today that Big Brother in the Exam Room: The Dangerous Truth About Electronic Health Records,” written by Citizens’ Council for Health Freedom (CCHF) president and co-founder Twila Brase, RN, PHN, has received a first-place honor in the 2018-2019 Literary Awards. 

CCHF to HHS OCR: Restore Pre-HIPAA Patient Privacy and Consent Rights

CCHF to HHS OCR: Restore Pre-HIPAA Patient Privacy and Consent Rights

ST. PAUL, Minn.—The Office for Civil Rights (OCR) at the U.S. Department of Health and Human Services issued a Request for Information (RFI) on “Modifying HIPAA Rules To Improve Coordinated Care,” and Citizens’ Council for Health Freedom (CCHF) took the opportunity to share its concerns and ideas before the OCR issues a proposed rule to change the HIPAA rule.

CCHF Urges Americans to Tell Feds That HIPAA Hurts Patients

CCHF Urges Americans to Tell Feds That HIPAA Hurts Patients

ST. PAUL, Minn.—One of the resolute aims of Citizens’ Council for Health Freedom (CCHF) has been to educate Americans that the 1996 Health Insurance Portability and Accountability Act “Privacy Rule” really isn’t about privacy at all. 

Will Trump Administration Restore Consent to HIPAA?

Will Trump Administration Restore Consent to HIPAA?

HEALTH FREEDOM WATCH

Volume 21: Issue 3: 3rd Quarter 2018

22 HIPAA Harms

22 HIPAA Harms

ST. PAUL, Minn.Citizens’ Council for Health Freedom (CCHF) is planning a social media event today—the 22nd anniversary of the Health Insurance Portability and Accountability Act (HIPAA)—and alerting Americans how HIPAA, in fact, doesn’t protect patient privacy at all. 

HIPAA was signed into law 22 years ago on Aug. 21, 1996, and CCHF will educate the public about “22 HIPAA Harms” throughout the day on Facebook and Twitter. 

Twenty-Two HIPAA Harms

Twenty-Two HIPAA Harms

Today is the 22nd anniversary of HIPAA, the law that eliminated patient privacy rights. On August 21, 1996, President Bill Clinton signed into law “The Health Insurance Portability and Accountability Act” (HIPAA). In 2003, the “HIPAA privacy rule” (permissive data-disclosure rule) went into effect. To show how little privacy you have, we’ve got a list of 22 ways HIPAA harms you.

Minnesota Bill Would End Coercive Consent Forms and Further Protect Patient Privacy

Minnesota Bill Would End Coercive Consent Forms and Further Protect Patient Privacy

ST. PAUL, Minn.—Minnesota lawmakers yesterday advanced a bill that would ensure greater patient privacy protection by requiring patients to initial each item to which they are consenting on their health records at the doctor’s office, hospital or clinic—thus allowing patients to pick and choose exactly what information they would like to be shared between medical professionals and for what purposes, says Citizens’ Council for Health Freedom (CCHF, www.cchfreedom.org), which testified yesterday in support of the bill.

CCHF Testimony - HF 1560 Patient Consent Requirements

CCHF Testimony - HF 1560 Patient Consent Requirements

Prepared Testimony
House File 1560 (Gruenhagen)

Initials required for each item of consent when requested to release health records.

Wednesday, March 23, 2016
Testimony of Twila Brase, President and Co-founder
Presented by Matt Flanders, Legislative Specialist