Please Share Your “HIPAA Hurt Me” Story

Please SHARE YOUR STORY about refusing to sign the HIPAA privacy form. You are allowed to refuse to sign the clinic or hospital "HIPAA Privacy form.” We encourage you to do so  It’s important to exercise this right, and we need as many stories about what happens when patients refuse to sign the form, particularly if you are denied care, made to feel bad, made to miss your appointment or hurt in any other way. Or perhaps you’re a practitioner and your hospital or ACO system is requiring you to deny care to those who exercise their right to refuse.

HIPAA Hurt Me

You Have a Right to Refuse to Sign HIPAA Form. The federal government has publicly stated that you have a right to refuse. That includes the right to refuse to sign the form after they write “refused” on it.

NOTE: Refusing to sign or choosing to sign provides you with no privacy protection to the 2.2 million entities given access to your data through HIPAA (1996) and HITECH (2009). However, if your data is broadly shared without your consent and you complain, if you do NOT sign, you are protected from clinic staff or lawyers saying that you signed a form that says you know how broadly your data can be shared and thus you should not have shared that confidential data. In essence they will use the form to blame you for sharing information you needed to share but wanted to protect.

If you refuse to sign the HIPAA privacy form, some clinics or doctors or hospitals may incorrectly refuse to provide treatment. If they do so, they are in violation of your HIPAA rights — but probably only because they don’t know you have that right. Be gentle but firm. You may want to contact us for wallet-size cards to give to them.  The U.S. Department of Health and Human Services has a web page that says you are allowed to refuse.

CLICK HERE TO SHARE YOUR STORY

 

Submit Your HIPAA Hurt Me Story

Please share your story about refusing to sign the HIPAA privacy form. You are allowed to refuse to sign the clinic or hospital "HIPAA Privacy form.” We encourage you to do so  It’s important to exercise this right, and we need as many stories about what happens when patients refuse to sign the form, particularly if you are denied care, made to feel bad, made to miss your appointment or hurt in any other way. Or perhaps you’re a practitioner and your hospital or ACO system is requiring you to deny care to those who exercise their right to refuse.