Why Patient Consent Should be Required for the Governor's Genetic Research Proposal

"The National Quality Forum is setting standards for primary care"

(American Medical News, January 12, 2004) - CCHC quoted

England considers DNA profiling at birth

The initiative will begin with wider antenatal screening. But soon babies could have their genetic profiles recorded at birth, to spell out their individual inherited risks of disease later in life.

SELECT QUOTES: Judge Allan Klein's Ruling on State Plan to Collect Patient Data Without Patient Consent

Striking an appropriate balance between personal privacy and healthcare research is ultimately the task of the legislature. To date, the legislature has chosen to allow the collection and use of data for research purposes, but only if the Department takes steps to protect individual privacy. The Administrative Law Judge has taken a "hard look" at the privacy protections in these proposed rules. He believes that the Department's proposals do meet the standard set by the legislature; in fact, they go well beyond the minimal efforts required to comply with the statutes.

The Judge's Ruling

This Report is part of a rulemaking proceeding held pursuant to Minn. Stat. §§ 14.131 to 14.20 to hear public comment, determine whether the Department of Health (hereinafter referred to as “the Department”) has fulfilled all relevant substantive and procedural requirements of law applicable to the adoption of the rules, evaluate whether the proposed rules are needed and reasonable, and assess whether or not any modifications to the rules proposed by the Department after initial publication are substantially different from the rules as originally proposed.

CDC Warns against use of smallpox vaccine, a report from 2002 public hearing in St. Louis, MO.

(Disclaimer: CCHC does not take any responsibility for the accuracy of this report).

Instead of a National Patient ID Number...

The new nationwide index could save lives, prevent fraud, and lower costs Columbia, Md.-based Sequoia Software Corporation earlier this month won a multi-million dollar federal research and development grant to develop a national Master Patient Index (MPI) that would link patient records throughout the country.

Health Care Access Fund Initiatives

MinnesotaCare is a comprehensive strategy to improve the quality of health care services, increase access to health coverage for the uninsured and contain health care costs. These strategies are funded by premiums paid by enrollees of the program to the uninsured, a 1% premium tax on HMOs and non-profit health service companies and 2% tax on providers. The total amount of revenue generated by these funding mechanisms will be approximately $200 million in fiscal year 1997 Of the funds currently being used from this fund, approximately 80% is used for the MinnesotaCare Subsidy Program for the Uninsured while the remaining 20% is used for initiatives such as those below. The following list of activities, all supported by the fund, are varied and help to meet the goals identified above.