National Reports
50-State Health Surveillance Report – a report of state databases tracking birth defects, cancer, newborn screening & vaccinations. Find your state on the map. Report includes actual language laws or regulations from each state.
Newborn DNA – several reports
The HIPAA Privacy Deception – 13 personal stories from real people
Why Electronic Health Records (EHRs) Should Not be Mandated – a 4-page well-cited document
Minnesota Documents
Why Small Clinics Should Be Exempt from Minnesota Electronic Health Records (EHR) Mandate (2015)
Letters from Clinics to Support Small-Practice Exemption MN‐Only Electronic Health Record Mandate
Minnesota Electronic Disease Surveillance System (MEDSS) – Diagram
Mayo Notice of Privacy Practice – MN Law requirements highlighted
Coercive Consent Forms
Essentia Health Meridian Consent Form
NON-Coercive Consent Forms
Unique Patient Identifier
National Patient ID — 2012 CCHF Report
10 Reasons to Oppose a National Identifier (UPI)— CCHF, October 2019
Remarks by CCHF President Twila Brase to the U.S. Senate HELP Committee — October 23, 2019
Chief Health IT Executives Push for National Patient ID System
Privacy Violations
HIPAA – The NO-Privacy Rule
Comparing Minnesota Law to HIPAA
Administrative Simplification – the part of HillaryCare that became law in 1996 and mandates HIPAA
HIPAA – Federal Medical “Privacy” Rule that does NOT protect privacy
HIPAA – Important Definitions
Unexpected HIPAA Definitions for Treatment, Payment & Health Care Operations
TAKE ACTION: Refuse to Sign HIPAA Privacy Form
ALERT: You can refuse to sign HIPAA “Privacy” Form – link to federal government’s website admits you are allowed to refuse
Federal Government: You Don’t Have To Sign HIPAA
Report it if You are Refused Access to Care, Says Federal Tweet
HIPAA: The Grand Deception ONE PAGE INFO & ACTION SHEET – use to educate clinic staff and as authority to refuse to sign HIPAA forms.
Mayo Clinic Privacy Notice showing where Minnesota and Iowa Privacy Laws are stronger than HIPAA – State legislatures are allowed to pass laws which actually protect privacy and limit the permissive access to medical records that has been granted to 2.2 million entities by HIPAA (2006/2003) and the HITECH Act (2009).
HIPAA Hurt Me – Share Your Story
CCHF’s President Commentary
Your Data Will Be Used Against You – August 29, 2012
Surveys and Polls
California HealthCare Foundation Medical Privacy Survey – Jan. 28, 1999
Privacy Lawsuits
(Part 1) Accretive Health, Inc., v. State of Minnesota – Jan. 19, 2012
(Part 2) Accretive Health, Inc., v. State of Minnesota – Jan. 19, 2012
Government Documents
Letters from Congress to HHS Calling for Halt in EHR/Meaningful Use Incentives (payments) – October 2012
Health Info Tech – HHS Is Taking Steps to Develop a National Strategy, May 2005 (GAO)
Summary and Justification for HIX IT Development
Minnesota Dept. of Health Registries – list of MN state health databases and specimen collections from 2013.
Summary of Nationwide Health Information Network (NHIN) Request for Information (RFI) Responses
Safety Issues
FDA Testifies to Six Reported Deaths and 44 Reported Injuries due to Health IT – February 25, 2010.
April is “Truth About HIPAA” Month!