Notes • Aug 2005 • Storing and Using Newborn DNA—Without Parent Consent

State IRB Documents Reveal Research on Baby DNA Without Consent

MDH approves research without knowing all the details
Private Company Uses Baby DNA for Product Development
Private Company Permits to Use Research Results for Commercial Purposes
March of Dimes Funds Genetic Research without Parent Consent
Linking Data in Cancer Registry, Birth Registry and Newborn Blood Spots Repository
MDH attaches identification system to re-identify data
Research on Children Acknowledged
MDH sends newborn DNA to a newborn blood spot bank for future cancer research
Flowchart for Study extracting DNA from blood spots of infants who died of SIDS

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