Press Releases • Oct 2012 • Storing and Using Newborn DNA—Without Parent Consent

New Virtual "Baby DNA" Repository Enables New Breaches in Privacy and Rights

ST. PAUL, Minn. – In yet another federal over-reach that breaches parental rights, the Newborn Screening Translational Research Network (NBSTRN) announced last week that it had developed a centralized, virtual, web-based repository of newborns’ DNA, obtained through dried blood spots. DNA samples are collected from infants at birth and often saved, stored, and used for research without the knowledge or consent of an infant’s parents.

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